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Monday September 15, 2025!

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Every dollar raised will go directly to fund ongoing research to develop treatments for CMT4B3. 

With your incredible support we will change the lives of children affected by Charcot-Marie-Tooth Disease. 

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MEET HUNTER

Hunter is battling a life threatening genetic disease that will leave him paralyzed.

We are racing against time to develop a treatment to stop the progression of this disease and ultimately find a cure for children battling CMT4B3. We are at a transformative moment where scientific advances are being turned into therapies that are changing the course of rare genetic diseases.

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