https://www.cmt4b3research.org/blog daily 0.75 2020-12-03 https://www.cmt4b3research.org/the-science daily 0.75 2020-12-03 https://www.cmt4b3research.org/blog-1 daily 0.75 2025-11-03 https://www.cmt4b3research.org/blog-1/blog-post-title-one-8npmx monthly 0.5 2025-11-03 https://www.cmt4b3research.org/blog-1/blog-post-title-two-bbpee monthly 0.5 2025-11-03 https://www.cmt4b3research.org/blog-1/blog-post-title-three-xselb monthly 0.5 2020-05-19 https://www.cmt4b3research.org/blog-1/blog-post-title-four-pbf4d monthly 0.5 2020-05-19 https://www.cmt4b3research.org/home daily 1.0 2025-11-10 https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/1604968187188-CISWF0BT2GS6SD6LTX38/HomepageMain.jpg https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/1608681030789-9TVRFD68P5QBGPUO1ZJ7/image2+copy.jpg HOME Gene Therapy Research For CMT4B3 https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/1608681086963-1N6EO90ER1KJHC76PDUA/image5+copy.jpg HOME Drug Repurposing for CMT4B3 https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/1608681147138-WCK0R8JB6H3U11ORR6N8/image6+copy.jpg HOME Models of Disease CMT4B3 https://www.cmt4b3research.org/hunters-story daily 0.75 2024-10-09 https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/1608760551437-ET03TSTASTXCIWOCWH9Y/story1.JPG HUNTER'S STORY - THE BEGINNING Hunter was born on April 13, 2017, by emergency C-section, weighing just 4 lbs. 2 oz. After five anxious days in the neonatal unit, we finally brought him home—overjoyed and relieved. Little did we know that this would be just the beginning of a much larger battle. https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/1608696666476-E8XFH1E3OLUPJ7R36Q60/story2.jpg HUNTER'S STORY - MISSING MILESTONES As Hunter grew, we noticed he wasn’t meeting his developmental milestones. He was slow to turn over, sit up, and crawl. Specialists told us, “He’ll catch up,” but as his delays became more severe, we grew desperate for answers. Physical and occupational therapy brought some progress, but by the time he was a year old, he still wasn’t standing or walking. When we insisted on genetic testing, the results came back negative, leaving us relieved but confused. As Hunter’s second birthday passed with no improvement, it became painfully clear—waiting wasn’t the answer. https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/1608696723835-UKEY2FU3H006MA3HTIXY/DSC_8186.jpg HUNTER'S STORY - THE DIAGNOSIS On May 19, 2020, just after Hunter’s third birthday, we received the call that shattered our world. Hunter was diagnosed with Charcot-Marie-Tooth Disease Type 4B3 (CMT4B3), a rare and devastating neurodegenerative disorder. With only 14 known cases worldwide, we were warned about the grim reality. The experts told us there were no treatments, no cures. Hunter would likely lose the ability to walk, use his arms, and may even go blind. We were told to brace ourselves for the worst and to return in a year. We were devastated, terrified, and utterly heartbroken. https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/1608696761717-SH4IXZBYH2HOS7PSJETC/hunter-emt HUNTER'S STORY - OUR HERO Now 7 years old, Hunter remains our hero. He has bravely endured surgeries, countless tests, and numerous doctor visits, yet his laughter and bright smile shine through. He can’t jump, ride a bike, or run like his friends, but that doesn’t stop him. He stumbles and falls but always picks himself up and moves forward. https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/1608696786532-63Z2R8MF16TL8J0QEKQ1/story4.jpg HUNTER'S STORY - OUR HOPE Hunter’s spirit inspires us to keep fighting. We refuse to give up on him—and with your support, we believe a cure is within reach, not just for Hunter, but for all children battling CMT4B3. https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/1608766270754-6R1WE65ZF0XTEW49DHT7/replacelastpicturewiththis.JPG HUNTER'S STORY Hunter and his parents - Iris & Brett https://www.cmt4b3research.org/hunters-tribe daily 0.75 2020-12-11 https://www.cmt4b3research.org/donate daily 0.75 2021-07-06 https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/1625189361873-BY4LG4PVQFUUA8GJFR3P/Info_Home8%403x.png donate https://www.cmt4b3research.org/what-is-cmt4b3 daily 0.75 2024-10-09 https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/1610812489395-N6HOCLT6B69YACEZ560S/recessivefigure+%281%29.jpg WHAT IS CMT4B3? https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/1610164677968-0EUQQ3WCH6E7CA709U6O/new-figure.jpg WHAT IS CMT4B3? https://www.cmt4b3research.org/research-overview daily 0.75 2024-10-09 https://www.cmt4b3research.org/our-mission daily 0.75 2025-11-05 https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/1630421042709-LENQCATRAD9X12WTG9DO/brettschultz.png LEADERSHIP https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/1630421450666-GU1C6UK26XUYGSRYYZYH/iris.png LEADERSHIP https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/1630421560876-OWR6AD7SAQMPKKUKKQQL/_MGL3485.jpg LEADERSHIP https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/1632149658294-744C9OZJEBSI6RO1CCDD/DSC_1442.jpg LEADERSHIP https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/1632769101116-126S94GXHJ1ZU33YRJA6/tempImage5JJJT4.jpg LEADERSHIP https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/8b34f570-8bf0-41c1-8aea-34c33c3d1df8/Screen%2BShot%2B2021-08-29%2Bat%2B7.02.45%2BPM.jpg LEADERSHIP 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0.75 2024-10-09 https://www.cmt4b3research.org/data-collection daily 0.75 2024-10-09 https://www.cmt4b3research.org/new-donation-form daily 0.75 2022-03-19 https://www.cmt4b3research.org/research-projects daily 0.75 2024-10-09 https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/1629914341154-06GM3NZGAPRR4BQ56NFC/burgess.jpeg RESEARCH PROJECTS Dr. Robert Burgess Jackson Laboratory https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/622f7a7d-1717-4805-9d61-3783692672eb/Large-10006452.jpg RESEARCH PROJECTS Dr. Jason Chua Johns Hopkins University https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/85b170a4-9ad4-4aac-afed-d2d224998f2f/jim-dowling-headshot-300.png RESEARCH PROJECTS Dr. Jim Dowling SickKids Hospital https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/837b5956-f1b8-4a7d-a0fd-166be213a487/Large-10004329.jpg RESEARCH PROJECTS Dr. Jefferson Doyle John Hopkins 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https://images.squarespace-cdn.com/content/v1/5f9d59ef2776400c91f7053f/1630268847231-XLPF5BU40JJ5A5GKPLWK/Untitled+design-3.png HELP US FUNDRAISE - Set up a Facebook Fundraiser! It’s takes less than 60 seconds to set up! 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